When Beth was born, she was diagnosed with Bardet-Biedl Syndrome (BBS). BBS is a disease with many complications including kidney failure. Beth’s extremely low kidney function caused lung disease and her mother, Erin, remembers Beth’s first year as incredibly difficult as the family navigated her medical needs. Beth spent the first eight months of herRead more
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Keziah is Lyndonna’s youngest child, born in October of 2014. Two days after Keziah was born, she was diagnosed with hypoplastic left heart syndrome, which meant that the left side of her heart was not pumping blood as needed. Due to this condition, Keziah was flown to the Stollery Children’s Hospital in Edmonton from herRead more
In December of 2018, one month after Liorah was born, she was diagnosed with biliary atresia, a rare disease that affects the liver and can be fatal. In May 2019, she was listed for a life-saving liver transplant. Liorah’s mother, Darline, was approved to be the living liver donor and a transplant was scheduled forRead more
Khai’s Transplant JourneyIn August 2017, Julia Macleod was 15 weeks pregnant with her son, Khai, when she went in for a prenatal ultrasound. At that ultrasound, the medical team told Julia that her baby had gastroschisis, a condition in which the organs are found outside the body, exiting through a hole beside the belly button.Read more
