When Beth was born, she was diagnosed with Bardet-Biedl Syndrome (BBS). BBS is a disease with many complications including kidney failure. Beth’s extremely low kidney function caused lung disease and her mother, Erin, remembers Beth’s first year as incredibly difficult as the family navigated her medical needs. Beth spent the first eight months of her life in the ICU. She received a tracheostomy when she was five months old and received oxygen through a tube for the next year and a half.
Beth’s health eventually started to stabilize but it was clear that her kidneys were failing which led her father Jared to be assessed as a potential living kidney donor. Jared was approved as a match and the family of six relocated to Vancouver roughly 800 km from their home in Prince George. Beth and Jared individually underwent successful surgeries and Beth remained in Vancouver for three months for post-transplant care. The Foundation was able to assist with the costs of accommodations and food for the family during this time. Today, Beth still has many medical needs related to transplants and her BBS but her family is grateful to be home all together.
National Organ & Tissue Donor Awareness Week (NOTDAW) takes place April 19 – 25, 2020.
NOTDAW is celebrated through awareness campaigns and encouraging individuals to register as organ donors.
It takes two minutes to register, please register online today and share your wishes with your family.
90% of Canadians support organ donation, however, less than 25% of Canadians are registered.
1 organ donor can save up to 8 lives and can benefit the quality of life for up to 75 people.
There are currently 4,500 Canadians waiting for a life-saving organ transplant.
Green ribbons, and green-lit landmarks, pop up across Canada during NOTDAW to honour the donors and donor families who gave the gift of life. They also acknowledge the thousands of patients in need of a transplant and those who have died waiting. Canadians are reminded to register their intent to donate and to discuss their wishes with family and friends. (Source: CBS)